I know that this is really weird. Like, me, sarcastic cracking jokes Justin Justice. Funny ol Big Man! Always trying to make light of something, pull a prank, be the Leo walking around saying Look at me! and then now I have cancer? That isn't funny Justin. People want to know how you are feeling but that's a tough one to ask about. Well, here you go: I'll update it when I can you don't have to ask (unless you want to which I'm totally ok with), let me entertain like I like to do. Let me be me, you be you and let's all get through this thing called life baybay!

What else is new? How do I feel? 

I feel really fine physically, I have had some side effects but nothing like crippling of day. 

I was originally denied the drug that was added by KU for the second drug “of the same family” however this one has a chance to give you an allergic reaction, so I went to the big building and sat in front of a couple of nurses while they put two IV’s in me and started the, hopeful, third part of my Chemo treatments, so they could watch and make sure I didn’t have a reaction.  Just before they started, Heide’s laptop was about to die and there was no clear place to plug it in.  I told her there might be something in the waiting room?  So, she went to see if that was the case and continued to do her work.  I am so happy that happened like this, because in 13 minutes from her leaving the room, your boy was Mia Wallace in Pulp Fiction.  Basically, I started to get rashes, my belly felt weird and I thought maybe I needed to take a little #2?  The nurses were like, can you get stand or do you want a bed pan? Now, things were ringing and the room started to just dim out and they looked at each other and I could tell “no, I don’t think I’m standing”.  They flew into action, I got so much benadryl in my left IV and the other nurse is pumping things in the IV that’s in my right arm while injecting me with an Epipen and it BOOM I come out of it. 
They talk to my Dr, he said to try again but this time at half the speed. 

They broke it down like this: 
Remember in Harry Potter where they had to sneak under the sleeping Cerberus to get past without him waking up? That is what we were trying to do with my immune system, get passed it so we could get to the bad parts without it realizing.  SOOOO, we tried again, half speed, and this time we just let the rashes start on my palms before stopping in again, thankfully. 
Just a full day from 7am to 5pm of allergic reactions and more IV’s and SO much benadryl I’ll be good for 2 summers of grass, just to make sure the insurance knows I need the original medication the Dr asked for.  Gosh, aren’t they the best.   

Just before my second treatment, my port started to produce a clear liquid. It is basically a cork in my right peck that they can put my treatments in and it stays in me, but it got infected under the skin. When I did the allergy treatment they didn’t use it and that is why I had the 2 IV’s.  
The Dr said we would replace the port, in and out procedure, nothing crazy. *The DNA tests came back, that was a lie*
That day was today (Wed. 7.22.26) and I knew I needed to update this site.  Since it was infected to the point that it started to develope a pocket, I bet you could fit a quarter in it from all the water I could squeeze out after a shower, they made the call to give me a pic line and an open wound until it heals!  Winning. 
Then once it is healed I get to go back and get a brand new port, but they will dig out a new hole in my chest and put it there.  I am Frankenstein and the Hulk at the same time. Hulkenstein.  If you see me and I have these new tubes coming out of my arm, that is the pic line, if you see me and I look like those old school micro machines where you put the coin in the back and it did a wheely, that is me using my old port hole for change storage.  Basically, didn’t quite get the outcome TODAY like I hoped, but again, I’m on the path to where I need to be and I’ll get there.  

***Update, 7.29.26***
I left the last entry however it really went sideways within 24 hours.  On Thursday the 23rd, I woke up and the bandage already looks like it was letting some fluid in.  The Wound Care team told me I should hear from someone within a day, so I didn’t sweat it too much.  They called and said I would have an appointment with them on the 10th of August to see someone about my open wound.  I’m not a Dr however this was already producing more fluid and they told me to leave it alone until my appointment… something didn’t fee right.  
I talked with my nurse at KU, Kayti, she’s always on top of things and she said that appointment time frame did seem correct, and I explained it was already showing that it was still producing things; so we put an over bandage on the already existing bandage because I was told to NOT touch the open wound on my chest.  Jameson asked why they didn’t do a closed wound, and that would have been better! 
Anyway, I put the new bandage on and go about my day.  Around 3pm I take my shirt off to check because it was feeling a little sore and kinda had some weight I could feel.  As soon as I took my shirt off, and luckily I was standing up to the counter of the restroom, the entire contents of the original packaging had become so saturated, so moist with puss and fluid that it fell in the sink and took about 3′ of packing with it.  I took a photo, sent it to Kayti and she called pretty much immediately with “How do you feel about the Emergency Room right now?” If she said I had to, I guess I’m going. 

So, shortening this up here a bit, I went into the ER on Thursday, 7.23.26 at 4:30pm about 6 1/2 hours in the waiting ER waiting room, another 24 hours in the ER closet of a room almost to the dot, then a stay at the “Tower” until Monday afternoon, 7.27.26, to make sure that this infection in my open port hole didn’t turn into a blood infection and, well, really be a big issue.  They pulled so much blood out to make sure that didn’t happen and then flushed my pic line and gave me all the new AntiBiotics through the pic line, some medicine through it, basically continued to use this NEW line I just got put in a day before I showed up.  Now my pic line is really sensitive where it goes into my bicep.  If you don’t know what a pic line is (and I barely do just cause i have one, I think it’s pic line but it could be picc or pick?) anyway, it inserts into the inside of your bicep with about a 3′ long tube that goes under your skin, around your armpit, up around your right peck and sits and drip and pulls right about your heart.  SO, since it didn’t have time to heal, it ended up swelling and also borderline infected.  Even during Chemo yesterday they had to change it because of the blood buildup.  If you were a betting individual you should have your money on a new pic line any day now…  

I went to see my Dr yesterday and he said regardless of being on this new AntiBiotic we would move forward with Chemo yesterday and I get my take home drip, so I’m back to being Bane covered in tubes. 
I go in tomorrow and have the pump removed for the weekend. 

Upcoming stuff: 
Aug 4th, labs and bloodwork
Aug 5th, MRI on my brain to make sure the Radiation, radiated. 
Aug 6th, My mom’s birthday be sure to say HBD
Aug 10th, Wound Care visit
Aug 11th, 4th round of Chemo
Aug 12th, PCP visit with pump
Aug 13th, take home pump removal
Aug 15th, MY birthday
Aug 18th, Office labs and bloodwork
…. I have more tour dates than a Rock band!  Come see me on tour!!!

**UPDATE 9.30.26**

I suppose I should toss out a little update, it’s only been about 2 months… 
Life doesn’t stop people, it keeps on going!  Seems like each time I thought I needed to give an update I either had something about to happen and figured I would just wait until after, or I would have a surprise that kept me from updating until I had some answers. 
SO, August came and as you saw I had a few appointments and other than the open wound that ended up getting me an at home nurse and more visits to wound care with a wound pump I went into Labor Day weekend feeling good enough to head to the lake and have a few days to feel normal again (although carrying the wound pump sort of took the illusion away a bit). 
The Friday before, the 4th, I took my first MRI to see where my progression was at.  When I came back from Labor day on the 8th I was supposed to get my results before I did my chemo treatment, however, because the MyChart app shows me my results I put them in ChatGPT and it told me: 
The growths had either stopped or were shrinking in some areas.  The only spot that was swollen, was the original area in the colon.  I was told that isn’t bad, it just means it was also reacting to the chemo.  
So, really good news!

Then, the following is something from a Dark Comedy perhaps?  I think if someone wanted to make a movie, it’s a decent plot of unbelievability.  
We came back from the lake on Sunday, Monday was a lazy Labor Day and then Tuesday I needed to get up early and get to chemo.  However, Monday night I started to feel off, I wasn’t really hungry, I was feeling some gas in my stomach and just overall ick.  
Tuesday I woke up and felt sickly and my stomach was in knots but I was on my way to see the DR and get chemo and he’ll tell me what is going on.  We didn’t even get to the point where they were going to go over the results of the test, they sent me up to get a CT Scan which revealed and I had a blockage in my colon and needed to be admitted to the hospital.  
While this was happening, we had been smelling gas outside the house and the gas company needed to come and look at that.  They determine that one leak was at the meter they would fix it but another was under the home and therefore it needed to be handled by a plumber and they needed to ‘red tag’ the gas and shut it off until that could be fixed.  
Meanwhile, the storm that happened on Labor Day weekend had knocked the power box loose on the back of the house.  While I’m sitting in my front room awaiting a call from KU when a room was available, the power starts to flicker… weird.  Then, it just goes out.  Now we are without Gas and Electricity and I’m on my way to the hospital with a bowel obstruction so there’s not a lot I can do at the moment.  I did reach out to our ‘landlord’ who wanted us to get a few quotes and make sure we are going through the home owners insurance, which I get but also I’m without 2/3 of the utilities in the house so I’d like to speed this up!
I get the call, they have a room and I make my way to the hospital.  By this time I actually had vomited a few times and I knew it was not the best situation.  I get checked in, they put the IV in my port since that did get accessed earlier in the day, and then… ugh… and THEN they start talking about an NG tube that needed to be placed.  If you don’t know what this is, just be warned it gets a little gross so read on with caution I guess?  An NG tube is a tube that inserts in your nose and is forced into your stomach down your throat.  You are awake, you have to help swallow the tube and it is the absolute worst thing I had experienced.  I gagged, I vomited, I begged the guy to stop, and it was no fun.  Once they got the tube in the stomach it was like they broke the reservoir and all that backed up stomach fluid had a place to go.  I spend the next 5 days in a hospital bed and eventually I get enough out of me that I become unblocked and I’m back to the other situation at the home. I get discharged on the 12th.  
Now, while I was in the hospital, my family didn’t have power or gas so luckily and thankfully Heide had a family member (Suzie I can’t thank you enough) that was able to put my entire family, dogs included, in her home.  
We’ve been doing the song and dance with the landlord and plumbers and Evergy and electricians and finally on the 21st the Electrician came out and finished installing a new power box and only needed Evergy (power company in Johnson County) to turn us back on.  They said they would come out on the 22nd, which is also when the plumber was coming out to fix the gas.  We are at the home stretch!  
…Then the plumber found that the reason the gas had a leak in the crawl space is because the WATER was leaking on the gas line and when he went to separate the gas line from the water line, the corrosion broke the water line.  Therefore, the water had to be turned off.  There was a time on that Tuesday when we had no power, no gas, no water and were living in a relatives basement while I just finished a treatment of chemo and could barely get out of the chair I was sitting in; that was a pretty low moment people.  
Luckily, the plumber knew our whole situation and was going to come out on Saturday to fix the water and then, we would be GOOD TO GO!
Then… Wednesday the 24th I started to lose my appetite.  I started to get those stomach pains.  I couldn’t be getting another blockage, I had purchased tickets for the kids and I to see a concert on Thursday and I needed to be a dad, I needed to be Justin and get to this show, I could NOT be getting sick again.  
I was though. I woke up Thursday and it was the same feeling as not even 2 weeks before.  I was sick to my stomach and started vomiting and knew I had to get to the ER.  
I get checked in and in a room on the ER floor and almost immediately I get ANOTHER NG tube, yay.  The mental PTSD from the first had made the 2nd just as bad even though the nurse that inserted this one didn’t waste an ounce of time, she went in quick and clean and didn’t stop regardless of me being a baby about it all!  
Now I’m getting the NG tube sucking out the stomach stuff again and the Dr’s aren’t wasting any time with diagnosis on this one, we decide that the since this blockage issue is going to keep happening I needed to have a surgery.  I was scheduled, same day, for a Lathroscopic Iliostomy surgery.  A poop bag.  
It all went well, best as it could go I guess, and I was discharged from that hospital stay just yesterday on the 29th. 
Meanwhile, the main waterline was reconnected on Saturday where he then found ANOTHER leak in the bathroom and told us that it was another claim since it was outside of the main line that he quoted.  Another tough moment here, I’m dealing with this never-ending situation at my home and learning how to take care of my front butt, or Gut Butt as I had been calling it, while at my home we are still without water in the most important room to have water I would bet (especially since I will be coming home with a new fun bag that needs a good amount of cleaning and draining every few hours).  
To avoid any further delays with quotes, insurance and trying to make sure Peter has paid Paul to get this done my parents with help from the Moose Lodge of Kansas City and a very fortunately placed gentlemen that heard their conversation while they were talking about it, they just paid and performed the work on that Saturday the 26th.  I have yet to meet this man, Dewey, that offered his plumbing services and when I do I will probably tear up a little because not only did he do this work at no cost to him other that parts… he also is getting treatment for his cancer that he is battling.  It takes a village and I didn’t know mine was as big as it is turning out to be.  
SO, that should be it right? end of the story?  Ha, not quite.  Apparently when the water was connected they mixed the hot and cold up and currently my toilet steams when it’s filled up and the spicket outside will kill the plants if you water them.  They are allegedly fixing this on Monday, lets hope I’m still out of the hospital when that happens.  

As for resuming chemo, I have a talk with my Dr next Tuesday and we’ll get a new gameplan for when that will happen.  

I think I touched everything that happened here and I apologize for the length of this update, however as you can see, it has been a crazy September; wish I could have slept through it like that guy from Green Day.